Super Bald

01/07/2014

Everyone has told me that my hair will start falling out fourteen days after the first chemo treatment, emphasis on WILL. I await this momentous occasion with trepidation, false bravado, and magical thinking that everyone is just plain wrong.

At my first chemo treatment, with shorter haircut #1

Monday: I am aware of the fact that my hair should start falling out in three days. While sitting in the car, waiting to order a sandwich at Great Outdoors, I feel something on the back of my head. I rub the spot and think, “Great. I’m going to be bald and have a zit on the back of my scalp.”

But there is no bump. Then I realize my scalp hurts, like when you wear your ponytail too high all day and then take it down and your hair is confused as to which direction it should bend. I’m thinking this is the beginning of the end. I’ve heard this is how it starts.

My husband (who is bald) wants me to shave it off, immediately. He tells me to “own it.” He is chomping at the bit, over the moon that, finally, someone will understand how he felt when his hair started falling out in high school. I’m glad I’m talking to him on the phone and not in person so he can’t see my huge eye roll.

I tell him I’m not going to shave my head until I’m certain that my hair is really, definitely going to fall out. I’m still holding out hope that I’ll be one of the lucky ones, that Taxol won’t affect me like it does almost everyone. I know I’m deluding myself, but you never know, there’s always a chance.

Time to pull out the scarves and practice tying knots.

Shorter haircut #2, and looking mighty thin after surgery and the first two cycles of chemo.

Tuesday: My son’s girlfriend and I have a discussion about not shaving my hair until I’m absolutely certain that it’s really going to fall out. She uses the words “clumps” and “patchy.” She thinks if I cut it really short and it comes out in clumps, I might have bald spots. If I keep it long then at least the longer pieces might cover up the patches.

Am I really considering a female comb-over for myself? Has it really come to this?

The hardest thing of all is going to be losing my eyelashes. I can imagine myself bald, but I cannot for the life of me imagine myself without eyelashes. Eyelashes are pretty, and mine have always been long and worthy of mascara. I resolve to continue wearing mascara until I have only three eyelashes left. Less than that would look ridiculous, right?

Now, losing the eyebrows is an entirely different matter. I don’t mind losing them at all. Here’s to a pluck-free next three months! And how can I complain about not having to shave my legs for the next three months?

Wednesday: My husband can hardly contain his excitement about getting to shave my head. It’s like Christmas in July. Who knew he could derive such joy from such a weird thing? Is this every bald man’s secret dream, to have their wives lose their hair and get to shave it off for them??? I’m mildly disturbed but glad he’s willing to help.

Thursday: Definitely more pain on the back of my head why I wake up. Hair still hanging tight, though.

Friday: A trip out of town has put some distance between my husband and his razor, thank God. This trip was needed, if only for that reason. For the first time, after I wash my hair, I notice a small handful of hair. The exodus has begun.

While visiting relatives in Oklahoma, including an uncle who is battling cancer, my aunt shows us photos of his curly post-chemo hair. I can only dream of getting the curly hair I’ve always wanted. My aunt’s sister-in-law, also a cancer survivor, tells me how hers fell out within a week. Her advice: “shave it all off.”

Saturday: More hair loss. An unexpected trip to the ER later that night (due to an infection where they removed the IVF filter from my neck), and seeing the semi-long strands of hair all over the pillow are proof of the truth. This is really going to happen.

It has begun.

Sunday: I’m not happy about being in the hospital on my “good,” non-chemo days. Maybe this colors my thinking, but I’m starting to feel very sad about losing my hair. I thought it would be no big deal. I’m actually dreading having to shave it off.

Monday: I’m released and get to go home. I tell Michael it’s time. Let’s do this.

I’m crying before he even starts shaving. I’m surprised. Why is this so hard? I realize that for the first time in my life I will be bald. I had a full head of hair when I came into this word, jet black American Indian hair my mom always said, so this is something completely new. It feels like the time I decided to ride the double loop roller coaster for the first time with my son, how I would have paid someone any amount of money to stop the ride and pull me off before we got to the top of the hill and descended into the first loop.

I do not want to shave off my hair.

He gets out the electric shaver and starts shaving. I cry the entire time. I hate it so much.

I really, really hate this.

Afterwards, I look at myself and think of all the things my female friends have said when discussing this: You’re going to look great. You have such a pretty face. I can’t wait to see what you’ll look like.

I look like a concentration camp victim. I look like a bug. I look really ugly.

I don’t want anyone to see me. I am so embarrassed.

What is up with me? I’m a feminist! It’s just temporary!! I am more than my hair!!!

I am almost bald.

Fake smile. I’m still crying inside.

It takes me days to get used to the shock of seeing myself in the bathroom mirror. I wear a scarf or hat and never take it off until the lights are off. What I could hide before is now visible to the entire world: I have cancer. I could pick and choose who I let know what I was going through before. Now, there’s no hiding.

When I reached a certain age, namely 50, I noticed I suddenly became a little bit invisible. Ask most middle-aged women and they will tell you the same thing. There’s a certain threshold a woman reaches when male eyes glance and slide past to younger, greener pastures. But there is also a freedom that comes with being invisible, a more carefree kind of existence, and you learn to accept that you have to make yourself visible with more than just your looks.

But now, suddenly, people were looking at me again. Their eyes would linger just a little longer than they should, noticing my scarf and lack of hair. It wasn’t mean-looking, it was more curiosity-looking. It’s summer in Texas and she’s wearing a scarf. Something must be wrong with her.

Almost gone.

And that’s the problem right there. I hate having to show my weakness to the world. Even against something like cancer, I hate having to show others that there is something that may be stronger than me, something I can’t fight off or wish away.

Being bald is the manifestation of the weakness one has to accept when they have cancer. It’s the loss of control that’s on display for everyone to see. Before, I didn’t have to tell you unless I wanted you to know. Chemo, in addition to all the other harsh effects on your body, makes it visible for everyone to see. It takes your choice away.

It’s really okay, it’s been a great lesson for me, especially in giving up control. But when you’re forced to make yourself so vulnerable to others, to show them what you’re dealing with, there’s a lot of pity that comes from that–and I do not want anyone’s pity over this.

All I really want is my hair.

Leaving my last chemo treatment. By this time I’ve lost almost all of my eyebrows and eyelashes.

Written by Mind Margins Posted in Cancer, Life Tagged with acceptance, cancer, chemo, chemotherapy, hair loss, illness, Life, losing your hair from chemo, mucinous epithelial ovarian cancer, ovarian cancer, Taxol